Naomi Litchfield joined Bionical Emas in April 2018 following extensive experience working in clinical research and the rare disease community.
As Global Patient Advocacy Lead, Naomi’s role is fundamental to the Bionical Emas mission of pioneering the way life changing medicines are developed and accessed for patients around the world.
Naomi and her team focus on ensuring the patient voice is always represented, creating a positive patient journey, and reducing burden where possible when designing Bionical Emas’ rare disease Clinical Trials (CTs) or Early Access Programs (EAPs). Naomi is accountable for all internal and external rare disease advocacy activities and fosters the Company’s thought leadership in patient centricity partnering with global patient organisations.
Naomi’s background in clinical research nursing was inspired by the care her survivor sister received for her four rare cancers. She knew from a young age she wanted to be a paediatric nurse and advocate for patients. Naomi trained at Oxford Children’s Hospital where she had the privilege of caring for many rare patients and their families. She then became a Senior Clinical Research Nurse at Great Ormond Street Hospital, caring for rare patients participating in clinical trials and early access programs. Naomi has administered various investigational medicines and seen the real impact they can have on patient’s lives.
Naomi is passionate about managing expectations, actively listening, learning from, and educating patient communities to ensure they are an equal stakeholder in the drug development pathway. The advocacy and rare team work closely with the operational teams to create a customized, positive patient journey. Where relevant, they also work with sponsor’s patient advocacy representatives to collaboratively define specific patient advocacy activities. Creating educational materials and communication plans to support patients and families embarking on Clinical Trials (CTs) or Early Access Programs (EAPs) is crucial.
The most rewarding part of Naomi’s role is working with rare families and giving them a platform to voice their unique needs and feeding back their value to the work Bionical Emas does. Naomi drives early, often, and transparent patient engagement with patient communities to highlight the value they bring to positively impact the Company’s Clinical Trials (CTs) and Early Access Programs (EAPs).
If you would like to watch a short video created by Naomi and the Patient Advocacy team discussing ‘What is an EAP?’, please click here – https://youtu.be/7hWNdTk1c_E.
To find out more about Naomi or Bionical Emas’ Patient Advocacy activities, please email firstname.lastname@example.org.