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Patient Advocacy

We are committed to ensuring patients are considered as a true partner in the clinical development pathway, working together with patient groups to gather insights and incorporate the patient and family voice, from design to delivery of all of our clinical trials and early access programs.

Principles of positive patient engagement

Early, often and transparent patient engagement is a crucial part of clinical development. Considering the patient perspective and incorporating the insights from the patient community can improve feasibility, accelerate timelines to approval and reduce patient and family burden. We listen and learn to truly understand a patient’s condition, their unique, personal experience and specific needs before we begin.

 

 

 

Related case studies

Operationalise an EAP for a rare neurodegenerative condition (ALS)

Facing a high unmet need and a history of challenges around early access to treatments.

Case Studies

Guide the evolution of a pre-approval access policy for gene therapy (DMD)

Working with a top 20 pharmaceutical company to guide the evolution of their public policy for providing pre-approval access to gene therapy.

Case Studies

Operationalise an EAP for a rare neurodegenerative condition (ALS)

Facing a high unmet need and a history of challenges around early access to treatments.

Case Studies