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This episode of The Patient Voice explores the myriad of ways in which patients’ personal experiences, perspectives, and preferences can provide an informed voice for access to medicines. We hear from two people living with different conditions, experiences, and paths to diagnosis and treatment, as they discuss their respective patient journeys and the critical role patient engagement, and their own self-advocacy played along the way. Our host, Naomi Litchfield – Director of Patient Advocacy, Bionical Emas, is joined by Sabina Kineen, living with a rare disease, and Maimah Karmo, a cancer survivor, who share how their experiences as patients led them to the work they both do now, advocating for and empowering other patients. Discussing everything from clinical trials and equitable access, to mental health and the value of community, Maimah and Sabina exemplify how much the patient voice matters.
A patient-centered approach to clinical development puts patients, families, and caregivers first. This ensures their needs, preferences, and perspectives are at the heart of the process of bringing life-changing investigational medicines to current and future patients. For clinical development to be truly patient-centered, words need to be put into action. We must collectively recognize that patient-centricity cannot be achieved by just one approach or one voice.
Hosted by Bionical Emas, ‘The Patient Voice’ brings together stakeholders from across the clinical development space – from industry experts, patient advocacy organizations, and healthcare professionals to patients, families, and caregivers – as they share their experiences and insights. Discussing barriers and challenges, solutions, and strategies, we explore how patient voices can be embedded in all stages of the ever-evolving clinical development process.
As a Contract Research Organization working across the clinical development pipeline, from early clinical research to post-trial and early access provision, Bionical Emas believes co-creation with the patient community and a patient and family-focused collaboration between all stakeholders is vital to the drug development process.
Join us on this journey to collaborative clinical development and listen to insightful conversations from pioneers in this space.
This podcast is strictly for informational purposes only and should not be considered to form any form of advice, including but not limited to medical advice. The opinions expressed in this podcast are those of Bionical Emas’s guests.
