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In this episode, we are joined by leading expert Giovanni Baranello, a professor of paediatric neuromuscular disorders at Great Ormond Street Hospital Institute of Child Health, London. In his fast-paced role he manages competing clinical priorities involving the diagnosis and clinical management of children with different neuromuscular conditions. Professor Baranello gives his unique perspective and insight into Real World Data collection from Early Access Programs.
A patient-centered approach to early access programs puts patients, families, and caregivers first. This ensures their needs, preferences, and perspectives are at the heart of the process of bringing life-changing investigational medicines to current and future patients. For early access to be truly patient-centered, words need to be put into action. We must collectively recognize that patient-centricity cannot be achieved by just one approach or one voice.
Hosted by Bionical Emas, ‘The Patient Voice’ podcast brings together stakeholders from across the early access space – from industry experts, patient advocacy organizations, and healthcare professionals to patients, families, and caregivers – as they share their experiences and insights. Discussing barriers and challenges, solutions and strategies, we explore how patient voices can be embedded in all stages of the ever-evolving early access landscape.
As a global leader in Early Access Programs (EAP), Bionical Emas believes co-creation with the patient community and a patient and family-focused collaboration between all stakeholders is vital. Join us on this journey as we explore early access best practices and listen to insightful conversations from pioneers in this space.
This podcast is strictly for informational purposes only and should not be considered to form any form of advice, including but not limited to medical advice. The opinions expressed in this podcast are those of Bionical Emas’s guests.
