Resources

Navigating Real-World Data Collection From Early Access Programs in the UK: An Underutilized Opportunity

Navigating Real-World Data Collection From Early Access Programs in the UK: An Underutilized Opportunity

Applying a Decision-Making Framework for Expanded Access to Duchenne Muscular Dystrophy

Applying a Decision-Making Framework for Expanded Access to Duchenne Muscular Dystrophy

The Patient Voice Podcast - Episode 2: How can patient insights provide an informed voice for access to medicines?

This episode of The Patient Voice explores the myriad of ways in which patients’ personal experiences, perspectives, and preferences can provide an informed voice for access to medicines.

World Lung Cancer Day Infographic

Lung cancer is the leading cause of cancer deaths worldwide, claiming more lives yearly than colon, breast, and liver cancers combined.

Johnson & Johnson Guide to Expanded Access

Expanded Access offers a potential pathway to investigational treatment for patients who are ineligible to participate in clinical trials and have exhausted all available treatment options. The Johnson & Johnson Guide provides patients, their caregivers, and their physicians with much-needed clarity around their options at a moment when the power of information cannot be underestimated. Bionical Emas is proud to have collaborated on this first-of-its-kind Guide.

What is an Early Access Program?

What is Real World Data?

What is a Clinical Trial?

Access to medicines: What you need to know

Naomi Litchfield, Director of Patient Advocacy at Bionical Emas, spoke to Laura Smith van Carroll, MMSc Head of Insight & Advocacy at Metabolic Support UK to share her thoughts and insights on what to expect as a metabolic patient and family when joining a clinical trial.

Motor Neurone Disease (MND) Infographic

MND affects the cells in the brain and nerves, called motor neurones, this can lead to muscle weakness and loss of movement. Unfortunately, there is no cure for MND at this time, but there is a significant need to raise awareness about its symptoms and to support research to find effective treatments.

Partnering for progress: Leveraging patient advocacy groups for better outcomes

Webinar hosted by Phormulate and sponsored by Bionical Emas

The Patient Voice Podcast - Episode 1: Co-creating a clinical trial

This episode of The Patient Voice discusses the importance of collaboration when designing a clinical trial and how the early engagement of all stakeholders is critical to long-term success. Hear from those actively involved in this process on how they're achieving exactly that for a rare genetic condition.