Resources
Here, you will find a collection of case studies, fact sheets, articles, and media giving you insight into how we can support you.
The Patient Voice Podcast - Episode 3: How Patient Voices Contribute to Equality and Diversity in Clinical Development
In this episode, we hear from two people who have lived experiences in advocating for their ethnicity, race, gender, and communities. They discuss their personal journeys and what led them to advocate for others to improve equality and diversity in today's clinical development landscape. Our host, Naomi Litchfield - Director of Patient Advocacy at Bionical Emas, speaks to Dr Sondra Butterworth, psychologist and founder of RareQOL, and Alfred Samuels, author, patient advocate and prostate cancer survivor. They discuss everything from accessibility and language barriers to mental health and the value of community, demonstrating the importance of how the patient voice can contribute to true equality and diversity.
Media
Navigating Real-World Data Collection From Early Access Programs in the UK: An Underutilized Opportunity
Navigating Real-World Data Collection From Early Access Programs in the UK: An Underutilized Opportunity
Fact Sheets
Applying a Decision-Making Framework for Expanded Access to Duchenne Muscular Dystrophy
Applying a Decision-Making Framework for Expanded Access to Duchenne Muscular Dystrophy
Fact Sheets
The Patient Voice Podcast - Episode 2: How can patient insights provide an informed voice for access to medicines?
This episode of The Patient Voice explores the myriad of ways in which patients’ personal experiences, perspectives, and preferences can provide an informed voice for access to medicines.
Media
World Lung Cancer Day Infographic
Lung cancer is the leading cause of cancer deaths worldwide, claiming more lives yearly than colon, breast, and liver cancers combined.
Media
Johnson & Johnson Guide to Expanded Access
Expanded Access offers a potential pathway to investigational treatment for patients who are ineligible to participate in clinical trials and have exhausted all available treatment options. The Johnson & Johnson Guide provides patients, their caregivers, and their physicians with much-needed clarity around their options at a moment when the power of information cannot be underestimated. Bionical Emas is proud to have collaborated on this first-of-its-kind Guide.
Media
Access to medicines: What you need to know
Naomi Litchfield, Director of Patient Advocacy at Bionical Emas, spoke to Laura Smith van Carroll, MMSc Head of Insight & Advocacy at Metabolic Support UK to share her thoughts and insights on what to expect as a metabolic patient and family when joining a clinical trial.
Media
Motor Neurone Disease (MND) Infographic
MND affects the cells in the brain and nerves, called motor neurones, this can lead to muscle weakness and loss of movement. Unfortunately, there is no cure for MND at this time, but there is a significant need to raise awareness about its symptoms and to support research to find effective treatments.